Unfavourable Results
Two days ago, Wednesday June 12, Sam had his latest PET scan. Yesterday afternoon the three of us met with Sam’s doctor to review the results.
The results are unfavourable – they are not what we want. Sam is still in the fight and there are still medical options to pursue. So, despite taking a hit, we hold hope and prepare for the next steps.
Results
The latest scan showed growth of the central mass in Sam’s chest. The cancer has expanded, it is not by a lot but it is distinct and beyond any possible measurement errors. In addition, two lymph-nodes in close proximity to the cancer show increased activity – we have to assume that the disease is now there as well.
Plans
The last few weeks have been a test to determine if Sam’s new immune system could battle the cancer on its own. Unfortunately, this test failed. During that time Sam has also had some of his best living. We were able to be home and he was able to enjoy his life, time with friends, and time learning at school.
Moving forward, Sam’s treatment plan will involve the re-introduction of some immune-therapy drugs. Nivomulab is an check-point-inhibitor will be given at a lower dose than previous. Other medications will be introduced in an attempt to reduce the more intense graft-versus-host impacts that Nivomulab has caused in the past.
Sam will also be closely monitored utilizing an alternating schedule of contrast-CT and PET scans.
Victories and concerns
Results from the latest PET scan are challenging. The cancer has grown. Though we remain thankful that it has not spread to other areas of Sam’s body.
Thankful for a great break at home and time to connect with friends and family! Thankful that Sam was able to connect with his friends and jump back into school work.
Thankful that the three new disease centers, treated using targeted radiation, have been removed (confirmed by April 5th PET scan).
We are thankful to the medical team here at BC Childrens’ Hospital who have explained things incredibly well and who have worked professionally and confidently. Your clear communication, compassion, and medical care give us great confidence.
We are thankful for the gift of a place to stay so close to where Sam is receiving his care. The Ronald McDonald House (RMH) has provided us a home away from home. This place is an amazing example of charity at work.
Thankful for friends who have chosen to meet regularly to pray for Sam. If you would like to join them talk with Beth H., Krista C., or contact the Westwood Church office.
We long for the day when Sam is clear of this disease.