Pending results and preparing for round 5

regular
Round 4 has been rough and we anticipate round 5 starting today. Results and recommendations are expected.
Author

Colin C.

Published

August 25, 2023

Round 4 is officially complete. It has been a rough one with little relief. The previous rounds Sam would usually have 2-4 days of feeling more normal… This past round hardly let up. As he was starting to feel a little better he was hit with another bought of nausea and mucositis.

Sam has a very significant clinic appointment today.

  1. We should receive the results of the lasted PET scan and lumbar-puncture

  2. The medical team may be ready to present recommendations for treatment – will a bone marrow transplant be necessary?

  3. Round 5 is likely to start today. This will begin with five days in hospital for chemo-drug delivery.

All this to say, I am a little anxious this morning.

Looking back – the past week

Despite Sam has not felt great we have had some great visits this week.

  • On Monday, we had a last visit with my parents and Buddy before they made the return drive back to Prince George.

  • Tuesday, Tina’s mom arrived!

  • Wednesday, Korena and Samuel Z. were here for the afternoon. This was Sam’s strongest day and it was great to see him reconnect with a friend. Also great to see Korena and Tina reconnect!

Concerns and victories

  • So thankful for all our friends and family for your visits, care, and on-going communication.

  • I am amazed the medical tech. that is available to support the decision making here. Results of the PT scan are expected today.

  • This round has been a challenge with much stronger side-effects causing pain and nausea. We have adapted and learned how to manage much of it.

  • We expect that major decisions will be discussed regarding Sam’s future treatment – specifically determining if Sam will need a bone-marrow transplant.

  • There is always concern that the cancer remains. We long for the day when Sam is clear of this disease.