Another extension to our days of freedom!

daily
outings
Sam’s bloodwork is holding! Additional bonus days away from the hospital!
Author

Colin C.

Published

June 17, 2023

Freedom!! We spent the evening exploring the Richmond Night Market.

Wow!

It is currently sixty days since we started this journey, and day twelve of the current/ 2nd round of chemotherapy. Today is also marks 7 days of not being in the hospital!

Dr. Cheng has told us a number of times that we need to remain flexible on this journey as each round of chemo is different. There are different sets of chemotherapy drugs in each round. With each round Sam is also different. Starting this round Sam has had a amazing return of his health as compared with the first. A few points to compare:

I thank God. I thank all of you for your care. I thank the medical team for all their great work.

The last couple days

Thursday, June 15

A relaxed day at the RMH. The simple and normal things of life: chores, meals, playing cards, strumming a guitar. Sam and I started playing crib again.

In the afternoon, Cal T. paid us a visit. We had a great talks and Sam had a new challenger for crib. Yes, Sam beat both Cal and I.

Friday, June 16

We had an appointment at the oncology-day-clinic. Checked Sam’s blood levels, cleaning and dressing changes for Sam’s central-line. The lab is fast – blood levels were back levels are dropping, but again they are still above any levels of concern.

I clarified with the doctor, wondering if it was possible to skip the valley caused by chemotherapy. As I understand it:

  1. The valley will come. Sam’s immune system will collapse to zero (as indicated by the ANC1 metric). … Yes, I have created a graph for this.
  2. Be flexible, each round of chemo is different. Some rounds the valley is short. Some the valley is long. Be flexible, as it is not possible to know.

In the afternoon, we had a great visits Chris and Jane, and David C. We all took Dave to the airport, and based on Hunter’s recommendation from over a month ago we shared a meal at the Fairmont – delicious!

The evening was a shock. Tina and I were not ready for this. Sam, energized by a great meal was not done. As many of you know, Tina often starts to come alive as the sun gets low. So we were off to the [Richmond Night Market](https://richmondnightmarket.com). We spent over two hours exploring the booths. Sam loved it! Tina loved it!

We are all stunned by how well Sam is doing!

Concerns and victories

  • Thankful for regular days! I encourage you to do the same. Take joy in all the little moments. They may seem simple but they are times of grace.

  • Again! Celebrating and addition to our additional days of freedom. This days were a welcome surprise. I hope this can be part of the pattern going forward – we will take each day as it comes.

  • Thankful for visits with friends and family.

  • Again, we are thankful that Sam is not feeling the effects of this chemotherapy round … yet. The pending valley-of-gross seems to be getting smaller and smaller. Of course there is some concern as Sam’s blood levels continue to drop. Some days in hospital are expected.

  • We are thankful that the treatment is working. There is also concern that it is effective to remove the cancer fully.

Footnotes

  1. ANC: absolute neutrophil count, a measure indicative of the body’s immune system. Measured via a blood test. see↩︎